Minnesota Rare Disease Advisory Council ECHO Series
As a dedicated general care provider, you are at the front line of deciphering your patients’ symptoms. And if those symptoms don’t add up, it can be difficult to determine the next steps. And we are here to support you.
Beginning November 18, 2024, the Minnesota Rare Disease Advisory Council (MRDAC) is partnering with Stratis Health to launch a Project ECHO Rare Disease virtual tele-education series. This innovative, collaborative learning model will help general care providers identify and refer patients with puzzling symptoms for a timely diagnosis and proper care.
The Rare Disease iECHO will feature:
- Expert-led sessions: Learn from subject matter experts who will share insights and strategies for diagnosing complex conditions.
- Composite case discussions: Use de-identified composite patient case studies to increase your experience with rare-disease diagnosis.
- Networking opportunities: Connect with fellow providers who face similar challenges, fostering a supportive community of practice.
Audience
Minnesota clinicians and care teams.
Registration
Register for the series.
You do not need to attend all sessions; you can sign up anytime.
- There’s no cost and no need to sign up for individual sessions.
- You will receive a reminder email on the morning of a session. The Zoom link will arrive in your email inbox 30 minutes before the session from Stratis Health iECHO.
Recorded ECHOs
- Session 1, November 18, 2024 – Finding the Zebras: How can a general care clinician better determine if a patient is presenting with a rare disease?
Resource: Article – A quantitative and qualitative analysis of patient group narratives suggest common biopsychosocial red flags of undiagnosed rare disease - Session 2, December 16, 2024 – Minnesota’s Rare Disease Centers of Excellence: Caring for the Zebras
Mayo Clinic – National Organization for Rare Disorders
M Health Fairview Masonic Children’s Hospital – National Organization for Rare Disorders - YouTube playlist of all sessions
Physician Continuing Medical Education (CME) Available
Stratis Health designates this activity for up to 1 AMA PRA Category 1 Credit™ per session.
Questions?
- For registration and session access, contact Katie Stangl, kstangl@stratishealth.org.
- For CME, contact Mark Benjamin, mbenjamin@stratishealth.org
Stratis Health is committed to making its information and communication technologies (ICT) accessible to individuals with disabilities by meeting or exceeding the requirements of Section 508 of the Rehabilitation Act of 1973. If you have comments and/or questions about the accessibility of any content for this event, contact Mark Benjamin.
The information provided in the Rare Disease iECHO series is intended for educational purposes only and should not be considered a substitute for professional medical advice, diagnosis, or treatment. The content presented in these webinars is based on the best available evidence at the time and is intended to enhance professional knowledge and skills. However, individual circumstances may vary, and the applicability of the information to specific cases should be assessed by a licensed medical professional. The iECHO team and any affiliated speakers or organizations make no representations or warranties about the completeness, accuracy, or reliability of the information provided in this series. By participating in this training, you acknowledge that you have read and understood this disclaimer and agree to use the information presented at your own risk.